Have you ever met a child who seemed different than other children—avoided your gaze, stayed quiet, had bigger tantrums, played or interacted differently? These behaviours may have surprised or concerned you. But what if it was just another way of developing?
At 19 months old, Lysanna knew all the letters of the alphabet. “At 3½ years old, she was already starting to grasp first-grade concepts on her own,” says her mom, Jessica.
As for 5-year-old Léonie, she’s been hyperactive ever since she was a baby. Her twin sister, Constance, on the other hand, is often daydreaming, and she struggles with hypersensitivity (to clothing and loud noises, among other things). “It really is like two completely different worlds,” explains their mother, Laurence-Aurélie.
Arnaud, age 5, was diagnosed with ASD last year. His parents think he might also have ADHD. “He’s a little ball of energy. He’s always climbing, running, and moving around. But he isn’t aware of the risk,” says his father, Philippe.
These four children have one thing in common: they have trouble regulating their emotions. “My daughters work hard at daycare to deal with overstimulation and regulate their emotions. They want to meet the expectations of their educators. But at the end of the day, all that pent-up tension comes pouring out.
Léonie starts running all over the place, while Constance withdraws and sits down with her thumb in her mouth,” Laurence-Aurélie reports. Philippe experiences something similar with his son, Arnaud, who also feels overwhelmed when he gets home. “He just shuts down.”
Little Lysanna, age 4, acts younger than her age when she’s tired or overwhelmed. “She stops using her words to communicate, crawls on all fours, licks things, and puts her foot in her mouth.” She also has intense meltdowns. “She might bite us or herself, hit us, or throw things at our faces,” says Jessica.
Stress, fatigue, and other hurdles
Raising neurodivergent children can be a challenge. As a result, parents often feel anxious, confused, and uncertain. “We often wondered what we were doing wrong with Arnaud,” says Philippe, who has three other children ranging in age from 15 months to 6 years.
Stress and fatigue are also part of everyday life. It took Laurence-Aurélie a while to figure out why she was always running on empty, even though other parents assured her they were going through the same thing at home. “I realized that I was going through the same things they were, but in a much more intense way,” she said.
Jessica is on medical leave. “Our daily lives are incredibly complicated,” she says. “Just when it comes to the morning routine, I can never predict how it’s going to go or what time we’ll actually manage to get out of the house.” “When you have a neurodivergent child, you become their caregiver as well as their parent,” Philippe explains.
Even though daily life can be challenging, many parents gradually gain a better understanding of their child and how best to support them.
The comparison trap
Parents often instinctively compare their child to others. This is even more true for parents who see that their child is developing differently.
“But it’s complicated, because we’re comparing our entire experience with our children to snapshots of other people’s lives. Maybe our kids look just like the other kids at the park, but in reality they have a thousand more meltdowns at home,” says Laurence-Aurélie.
Social worker Anouk Brière-Godbout cautions: “Sometimes, parents develop expectations based on what a neurotypical child should be able to do. Then, if their child can’t do it, they think there’s something wrong. But these expectations aren’t realistic for their child.”
Comments that can hurt
Children who act differently than their peers may attract all kinds of comments. “At a family gathering, one of my uncles said, talking about my son: ‘You can always make him laugh because he’s a little slow.’ It was extremely hurtful,” Philippe recalls.
Parents of neurodivergent children also often receive unsolicited parenting advice from those around them.
“I call it ‘misguided kindness.’ These people mean well, but their advice isn’t helpful,” says psychoeducator Stéphanie Deslauriers.
In fact, it actually reinforces feelings of inadequacy, which many of these parents are already dealing with. Laurence-Aurélie can attest to this: “You try everything people tell you to do: You try to stay calm, you try to be firm, you try to negotiate. You see that nothing is working, and you feel incompetent.”
A parent who feels judged may change their behaviour to meet the expectations of those around them, even if they know that their child’s needs won’t be met. “This means that the way others view the situation can directly affect the quality of interactions between a parent and their child,” says Anouk Brière-Godbout.